I don’t know anyone that has Alzheimer’s but to see someone who is suffering from this disease is heartwrenching. It was an eye opener to watch Cynthia Mcfadden go through the 12 minute exercise. My heart goes out to the Seniors and to their family who are coping with this disease.
Experiencing Dementia Firsthand
P.K. Beville, a geriatric psychologist and founder of the nonprofit senior citizen advocacy group Second Wind Dreams, is trying to remedy this problem. She created the Virtual Dementia Tour, an experiential kit used to simulate the symptoms of age-related Alzheimer’s and dementia and to help caregivers better identify and cope with their patients’ behaviors and needs. “Once you go through the exercise you find that most of the behavior patterns are actually coping strategies,” Beville said.
Cynthia McFadden of “Primetime” agreed to try out the Virtual Dementia Tour
Here’s how it works:
First the subject is fitted with gear that simulates the physical symptoms of age.
A pair of yellow-tinted goggles mimics the effects of eye diseases, like macular degeneration and glaucoma. The subject then places dried corn kernels in their shoes and gloves, creating painful sensations like those caused by peripheral nerve damage.
Finally, the subject’s fingers are taped together, making it difficult to grasp objects and utilize their hands, as though the subject is suffering from arthritis. Once the physical symptoms are manifested, the subject is ready to experience the cognitive effects of dementia, which can include memory loss, confusion, inability to concentrate, agitation and the inability to carry out simple tasks. To create this mental disorder, the subject listens to something called a “confusion tape” through headphones — a constant loop combining environmental noises, static fuzz, sporadic loud sirens and beeps. This cacophony helps induce a chaotic mental state, similar to what many dementia patients experience. Once the participants are all geared up, the experiment begins. Test administrators read a set of instructions to the participants, giving them five simple tasks to complete — set a table for four, brush your teeth, fold some laundry, etc. Even this is not as straightforward as it sounds: Test administrators intentionally read the instructions at the same volume as the “confusion tape,” so that it’s hard for subjects to even decipher what they are supposed to be doing.
McFadden was given a seemingly simple task — find a white sweater — but she said she couldn’t help being distracted by the incessant noises coming from her headphones. In order to stay focused, McFadden said, she had to start talking to herself. “Honestly, the thing that shocked me the most is that I couldn’t remember five simple instructions,” she said afterwards. “It changed my understanding of what people with dementia face every day. “I mean, I’m the queen of multi-tasking. I can do anything, I can do 20 things at once, I’m a mom, I’m a, it’s very humbling,” she said.
Impeded by limited motor skills, blurred vision, and the incessant buzz of distracting noises, participants, like McFadden, often exhibit behaviors that mirror those of Alzheimer’s patients, Beville said. They become frustrated with their inability to perform what they know are simple tasks, and unless they get help or guidance, they often resign in anger and defeat. The experiment has helped caregivers better understand the plight of their loved ones, a crucial weapon in the fight against Alzheimer’s. Beville said she has administered the Virtual Dementia Tour to more than 10,000 professional caregivers, and has identified specific ways of improving care for a person with Alzheimer’s. She said that offering positive reinforcement and encouragement is essential for any caregiver.
In several of her experiments Beville provided guidance by offering a pat on the back and saying, “You’re doing great.” By repeating this every four minutes, she found that the person remained calmer and was able to accomplish all of the tasks that were assigned.
By learning how to better cope with the effects of Alzheimer’s, caregivers and family members might feel more equipped to manage and treat a loved one who is diagnosed with the disease,” Beville said. “It is a way of giving people hope,” she said. And in the battle against Alzheimer’s, a little bit of hope can go a long way.
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